Board Of Directors

OFFICERS

President:
Sylvia Renfro
259 Lambright Rd.
Livingston, TX  77351
(936) 232-4068
sylvia@4p-supportgroup.org

Vice President:
Varsha Daryanani
Varsha@4p-supportgroup.org

Secretary:
Meagan McLean
secretary@4p-supportgroup.org

Treasurer:
Jessie Jnkins
Treasurer@4p-supportgroup.org

Former Executive Director (2014-2022) and Past President (2008-2014):
Amanda Lortz
amanda@4p-supportgroup.org

Director at Large:
Jessica Franklin
Jessica@4p-supportgroup.org

Director at Large:
Felicia van Dyk
Felicia@4p-supportgroup.org

Director at Large:
Morgan Elliston
Morgan@4p-supportgroup.org

REGIONAL DIRECTORS

 

Region 1

(ME, VT, NH, CT, PA, DE, MA NY, RI, NJ, QC, NB)

Cheryl Donovan
Region1@4p-supportgroup.org

 

Region 2

(WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD)

Nikole Walker
Region2@4p-supportgroup.org

 

Region 3

(ND, SD, NE, IA, MN, WI, IL, OH, MI, IN, MB, ON)

Heather White
Region3@4p-supportgroup.org

 

Region 4

(TX, LA, OK, AR, MO, KS, CO)

Stephanie Benson
Region4@4p-supportgroup.org

 

Region 5

(WA, OR, AK, MT, WY, UT, ID, BC, AB, SK)

Michael Paruch
Region5@4p-supportgroup.org

 

Region 6

(HI, CA, AZ, NV, NM)

Vacant
Region6@4p-supportgroup.org

Misc Contacts:

Para informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Sylvia Renfro a (936) 232-4068 o sylvia@4p-supportgroup.org.  Gracias.

 

Newsletters:

Felicia van dyk
Felicia@4p-supportgroup.org

 

Membership Information:

Sylvia Renfro
sylvia@4p-supportgroup.org

 

 

Medical Advisors:

Dr. John C Carey, Salt Lake City, Utah

Dr. Amy Calhoun, Salt Lake City, Utah – acalhoun@4p-supportgroup.org