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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Kelle91 replied to Kelle91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Are these findings consistent with someone who has celiac disease?
Thank you so much, Scott. Your answer was incredibly helpful. Here are the biopsy results. I still haven’t gotten a call from the doctor’s office. D2 BIOPSIES: Duodenal mucosa within normal limits. B. D1 BIOPSIES: Duodenal mucosa with foveolar metaplasia. C. GASTRIC ANTRUM BIOPSIES: Antral mucosa with mild chronic inactive gas... -
- seameruok posted a topic in Introduce Yourself / Share Stuff0
Constipation
Hello all you silly yaks. My name is Cathy, I am 73 years old and was diagnosed with Celiac 24 years ago. I have always had problem with constipation, but seems worse of late, can't go without using a stimulant laxative like senna, I cannot use it daily because it is too strong. Without anything I can go 6 days without a bm. What does everyone do for... -
- Scott Adams replied to Katie0711's topic in Board/Forum Technical Help3
Getting in contact with someone
Yes, I recommend creating a new post on the forum describing your son's symptoms. -
- Scott Adams replied to bluebnrf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Pre-Diagnosis
Feel free to share your blood test results for your celiac disease panel (hopefully they did this). The endoscopy procedure is generally safe and complications are rare. Sedation ensures that the patient feels minimal discomfort. Most people do not remember the procedure and experience only mild side effects like a sore throat or bloating afterward. -
- Scott Adams replied to lasthope2024's topic in Gluten-Free Foods, Products, Shopping & Medications3
Immunocal?
If this is not a prescription, you would need to contact its maker to find out about its gluten-free status.
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